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Aphasia migraine

by Dave
(Flint, mi, genessee county)

This is about my wife.the love of my life for 47 years. She is 65. Her symptoms started in June 2016. She went out driving one morning and when she returned she told me she was lost for maybe 20 minutes. She couldn't tell where she was and remember anything until she came to. The next morning she woke up with mild to medium grade headache. 3days later went doctor. He made app. With neurologist and put her on depakote.after a week she was afraid of weight gain so he put her on topamax. Still headaches. Days later she was sitting in house and lost her ability to speak and move around well. Took her to hospital where they started tests and gave her this cocktail injection with benadryl, compozine and some I think nsaid. She came out of it in about 4 hours. The next day she had another spell, same thing cocktail and came out of it while still in hospital. Saw neurologist in hospital run all kinds of tests 2 MRIs ctscrans blood test on and on. Couldn't find anything physical. Went home followed up with neuro put her back on depakote thinking maybe topamax side effect caused aphasia. Still mild grade headaches everyday. Tryed some over the counter pain meds, none help. Doctor put her on indocin 25 mg 2 daily and 500mg 1dailly naproxen in September, didn't help still taking it today November 9 2016. Headaches have never stopped.She hadn't had another aphasia spell until 5 days ago Nov.5. We think maybe a middle eastern food she had on nov 3 triggered it because she woke up nov 4th exhusted all day then it hit on the 5th.She could move fine but with foot shuffle but speech was gone. Remember, when she has these spells she can understand everyone and is well aware of her surroundings and normally can move arround ok but sometimes with foot shuffle, she just cant speek. Doctor said in September if it happens again lay her down and she will come out of it or give her benadryl and it worked. She has had spell everyday for 5 days. They lasted 3 hrs, 1 hr, 20 minutes, 10 minutes, and 2 hrs 40 minutes. Always coming out of it with benadryl. Having a spinal tap tomorrow Nov 11 2016. She also had eegs, Lyme d test, 1 band # 30 positive.If you could help or let me know the best place to take her that specializes in this type of thing. We are hoping that the spinal tap finds something tomorrow. We live in southeast Michigan. Maybe Michigan has somewhere good. If I could find something to help these everyday headaches she has would be great. I dont think the drs are trying enough medicines. My wife has always been so active and now she can't do so much because she is fatigued so easy.she was a 1 pack a day smoker for yrs until 5 years ago Thankyou so much for your time. Sincerely Dave

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by: Mary K

Hi Dave..clearly she is having global amnesia with migraine. If she has not had a trial of infusions or Botox, I would recommend this. I believe the Mayo Clinic in Rochester has a good headache center and I would also recommend the Michigan Head and Pain Institute. Remember, migraines and headaches can start at any time in life. Good luck!

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